If there was one thing I never imagined when I was 16 and planning my final years of high school in order to pursue a career in law, it would be that I would be disabled while doing so. When I was diagnosed at age 21, I didn’t stop to think about how it would affect me long term outside of a medical context. And for a while, I could pretend it didn’t. At least until, the wheels fell off.
There’s a lot floating around on the Internet about the importance of self-advocacy, and I see a lot about what that can look like, but not so much about what to do when everything goes wrong. I answer: What is your biggest regret? What is a common miscommunication? What is a recent success?
I've been absent for a while. Honestly, this is the first time I've even been able to go near my keyboard and to attempt to write. It hurts, but in a good way. It aches the way that muscles do after physical therapy. There's that sharp pang followed by a sigh of relief after relocating a joint.
If my journey was a book, I guess I'd call this blog Chapter One after a long, convoluted, and confusing Introduction.
Yes, I do realise that sounds trite as anything, but my health journey has been confusing and all over the place, and I'm still trying to make sense of it myself.