A bit of a ramble about my rheumatology appointment, how to be a good doctor, and how to be a good patient.
This morning, I woke up at 5am. Normally, like any young adult, my reaction would be to groan at waking up at such an ungodly hour, but today I was ecstatic, I slept for five consecutive hours last night! After the week I've had, where I've been lucky to get an hour total, it felt absolutely amazing to get some proper sleep.
My pain reached the point where I was actually in tears, struggling in vain to convince myself that I was fine, hoping that if I just told myself to be strong it would go away on its own. Luckily, I have some amazing people in my life who know the difference between when I'm being brave, and when I'm just putting on a brave face.
Because of my health I've been holed up in my room more often than not, so after I had my endo surgery we came up with the idea of creating a little sanctuary space for me upstairs.
I was really hoping that I could start out this blog all positive, but I guess that’s something that I’ll have to accept, sometimes illness has other plans. I just have to do my best to work with what I’ve got, if I have less spoons today than normal, that’s ok. Hopefully there’ll be a day when I don’t have to count my spoons quite as obsessively, but until then, I just need to come to terms with the fact that my daily supply of spoons is finite, but it doesn’t mean that my daily amount of happiness is, just, for now, I have to find it in different places.
If my journey was a book, I guess I'd call this blog Chapter One after a long, convoluted, and confusing Introduction. Yes, I do realise that sounds trite as anything, but my health journey has been confusing and all over the place, and I'm still trying to make sense of it myself.